Forum Discussion
caprice812
11 years agoSeasoned Ace
To everyone, my prayers sent out to all of you!
I became very tired where I was sleeping 10-12 hours a day. I knew something was wrong, but didn't know what it was. I tried looking up my symptoms online, and that is such a waste! I didn't go to the doctor till I lost vision in one eye. My family dr. sent to me see the eye dr. He didn't see anything wrong with my eyes (after several test) but it showed something behind the eyes.......so a neurologist was recommended. That Dr. knew right away what I had, and ordered more test. I went back home and checked online and sure enough, my symptoms were there. All test verified I had MS. No one I know of in my family history has it, I was the one blessed with it, LOL. Back almost 27 years ago half my face went numb, neurologist said test showed a "sinus pocket" and wanted to follow me up. I never went back because I didn't have insurance then. They can put me back to that time that it was MS and said they could go back further if I could remember anything else. My neurologist put me on injections right away because I had it so long that I was almost to the progressive stage which means there is nothing you can do when you get to that point. I take medicine for a few other things too. Its no fun taking high doses of injections, and other pills, but I do what I must do to keep going. I have a bunch of kids (not a grandma yet either) and I just think of them when I feel down. No one understands the "hidden illness's" people have. But when I relapse, my kids are there bringing the walker to me and waiting on me! They help out around the house if I ask them but I push myself more that I should, which leads to more exhaustion. They are teens, what can I say, LOL.
Stress just made my things worse. I had to learn to de-stress myself. It was not easy. I always raised my voice to get my point across, argue when I felt like it, LOL. It was a lot of work, but when I realized stress was causing relapses also, I got rid of those people. Yes, family members to. I know its easy to do that if you don't live with them, but when you do its almost impossible. My husband would let things go in one ear and out the other over the years when I ranted and carried on. Once I stopped, he started (go figure) He tried to get me going, I just let it go in one ear and out the other!
Nothing or no-one is worth loosing your/ a life! There is way to much support out there. Sometimes you keep going strong for your kids, or your pets, or anything special to you. But you keep going.
There are a lot of places out there that will help you with finances. My injections are VERY expensive even after insurance pays their part. There are funds set up at sites to help with that, depending on what you have. Don't be afraid to ask!
I am not saying anyone has my health issues, I am just saying to go get checked. It does no good trying to guess your problems at all, and definitely not good to shove it under the rug and wait till something major happens like I did.
I might miss an injection now and then, or even miss taking my pills. My memory is not so good. Now I have learned to resort to other ways to remember to take them. I don't always follow my diet (I just cant give up my chocolate) but the meds are working good.......for now!
Its not easy, nothing in life has been easy for me anyway. If it weren't for my kids, I don't know how I would have coped, LOL
Just remember, everyone is loved and their life is worth everything!
I became very tired where I was sleeping 10-12 hours a day. I knew something was wrong, but didn't know what it was. I tried looking up my symptoms online, and that is such a waste! I didn't go to the doctor till I lost vision in one eye. My family dr. sent to me see the eye dr. He didn't see anything wrong with my eyes (after several test) but it showed something behind the eyes.......so a neurologist was recommended. That Dr. knew right away what I had, and ordered more test. I went back home and checked online and sure enough, my symptoms were there. All test verified I had MS. No one I know of in my family history has it, I was the one blessed with it, LOL. Back almost 27 years ago half my face went numb, neurologist said test showed a "sinus pocket" and wanted to follow me up. I never went back because I didn't have insurance then. They can put me back to that time that it was MS and said they could go back further if I could remember anything else. My neurologist put me on injections right away because I had it so long that I was almost to the progressive stage which means there is nothing you can do when you get to that point. I take medicine for a few other things too. Its no fun taking high doses of injections, and other pills, but I do what I must do to keep going. I have a bunch of kids (not a grandma yet either) and I just think of them when I feel down. No one understands the "hidden illness's" people have. But when I relapse, my kids are there bringing the walker to me and waiting on me! They help out around the house if I ask them but I push myself more that I should, which leads to more exhaustion. They are teens, what can I say, LOL.
Stress just made my things worse. I had to learn to de-stress myself. It was not easy. I always raised my voice to get my point across, argue when I felt like it, LOL. It was a lot of work, but when I realized stress was causing relapses also, I got rid of those people. Yes, family members to. I know its easy to do that if you don't live with them, but when you do its almost impossible. My husband would let things go in one ear and out the other over the years when I ranted and carried on. Once I stopped, he started (go figure) He tried to get me going, I just let it go in one ear and out the other!
Nothing or no-one is worth loosing your/ a life! There is way to much support out there. Sometimes you keep going strong for your kids, or your pets, or anything special to you. But you keep going.
There are a lot of places out there that will help you with finances. My injections are VERY expensive even after insurance pays their part. There are funds set up at sites to help with that, depending on what you have. Don't be afraid to ask!
I am not saying anyone has my health issues, I am just saying to go get checked. It does no good trying to guess your problems at all, and definitely not good to shove it under the rug and wait till something major happens like I did.
I might miss an injection now and then, or even miss taking my pills. My memory is not so good. Now I have learned to resort to other ways to remember to take them. I don't always follow my diet (I just cant give up my chocolate) but the meds are working good.......for now!
Its not easy, nothing in life has been easy for me anyway. If it weren't for my kids, I don't know how I would have coped, LOL
Just remember, everyone is loved and their life is worth everything!