Forum Discussion
11 years ago
Wow thank you for starting this! I am constantly amazed by the supportive people on this site. Reading through everyone's stories has me in tears!
As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.
http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682
As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.
http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682