Forum Discussion
luthienrising
11 years agoHero+
"frozenorangejuic;12971295" wrote:
Wow thank you for starting this! I am constantly amazed by the supportive people on this site. Reading through everyone's stories has me in tears!
As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.
http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682
I hope you can find what you need. Depression treatment is hard; having been there and having been caregiver to people who are there, I just can't understand how it doesn't itself get classed as a disability.
But mostly I wanted to say that I love that image SO MUCH. Thank you for including it at the end. I've just bookmarked it for my rough days, which are mostly the result of being oversensitive to the moods of those I am caring for, so that their rough days become mine, even when their days are really only roughish.