We care! Supporting Simmers going through hard times.

Thank You for this thread Rose!! You are such a sweet, kind, and caring person!!

Wow thank you for starting this! I am constantly amazed by the supportive people on this site. Reading through everyone's stories has me in tears!

As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.

http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682

"noodlesandme;12970766" wrote:
I've read all of your posts, and I just want to send love to all of you, and tell you that I care.

Hello @noodlesandme Thankyou very much for your caring support for everyone that has posted on this thread.

"frozenorangejuic;12971295" wrote:
Wow thank you for starting this! I am constantly amazed by the supportive people on this site. Reading through everyone's stories has me in tears!

As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.

http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682

Hello @frozenorangejuic. I send lots and lots of special thoughts to you! I am so very sorry that you are in constant pain. I wish I could put lots of soft pillows to surround you and take away the pain, and place a flower petal blanket over you to give you relief from your pain. I know that I can't , but please know that you will be in my thoughts. I hope that there will be a way that you can have the tests done that you need to have. Sending many caring thoughts to you. Also sending a little posy of flowers that you can imagine is sitting on the window sill in your home, and each bloom contains thinking of you thoughts from simming friends here.

Very sorry to hear of all the losses -- my mom's been gone for close to 10 years (anniversary will be end of January 2015), and my dad died way back in 1970 when I was 11 (Mom never remarried).

Right now the issue isn't totally in my life, but it's with my mom-in-law -- she's been having trouble getting what she needs at her skilled nursing facility, including some important stuff like blood test results not getting faxed over to her doctors at the clinic. It's handy that they'll draw the blood because it saves my husband and brother taking her to the clinic all the time (she's been in a wheelchair for over 25 years after failed scoliosis surgery, and takes two people to help her in and out of the car; my brother-in-law is stronger than I am, at least till I get my plumming rear end to the gym!), but not when they don't send the results where they're supposed to go. My husband is dealing with the situation for the most part but it might be time to get a meeting with the regional ombudsman who handles elder care issues for the state. And we really don't want to have to move her, nor does she want to move again; she's actually made a few friends among some of the other long-term residents, and she's enjoying activities like bingo -- she even got to go on one of the outings to a local historical museum since they used the bus that has a wheelchair lift. Not sure how much time she has left (she'll be 83 in January) but I'd like them to be as quality as they can be, and right now they're close but not quite there.

The good news is that brother-in-law is doing really well with his medication and therapy for mental health issues; he called last night to get the phone number for our old church because he wants to volunteer with the Downtown Streets Team and maybe work at the Food Closet which the church hosts. I think that is super cool! I wish his dad was still around to see the changes that have taken place...but I think he's looking down from Heaven and smiling. :)

I just want everyone to know that I am thinking of you, prayers go out for all of you, and imaginary hugs to you all too!
I have this thread bookmarked. I don't really reply, but want you all to know that I understand. I feel your pain.

I can tell my memory is slipping away, I blame it on old age, LOL. I usually do not repeat something that someone told me anymore, because I don't remember exactly what they said and I am not one to start rumors, drama, or lies. I just honestly don't remember! I really don't want another MRI just to see how many lesions are lit up in my brain!

People park in handicapped parking for a reason. Just because I can actually walk doesn't mean I shouldn't park in that spot! I just got my sticker about 4 years ago. I cant walk far without being exhausted. I cant walk or stand long without my legs wanting to lock up on me. I drive to work with one eye open sometimes (they get blurry at times, usually on the days I take my injections). Sometimes my balance is not that good. When you have an *invisible* disease, people think there is nothing wrong with you ( I know because I was one of those people).
Oh, and why do people place their empty buggies in the handicapped spots instead of the cart corral? This just bugs me! The cart corral can be two spots over but they will turn around and walk over and leave them in the handicapped spot!

I don't remember what I was leading up to now! LOL. I know there was something I wanted to say though :s I hate it when that happens!

We just take it a day at a time, I do anyway. We never know what tomorrow will bring. We don't know why it happens to us. But there is a reason and we may not ever know!

Have a good day everyone!

"stilljustme2;12972450" wrote:
Very sorry to hear of all the losses -- my mom's been gone for close to 10 years (anniversary will be end of January 2015), and my dad died way back in 1970 when I was 11 (Mom never remarried).

Right now the issue isn't totally in my life, but it's with my mom-in-law -- she's been having trouble getting what she needs at her skilled nursing facility, including some important stuff like blood test results not getting faxed over to her doctors at the clinic. It's handy that they'll draw the blood because it saves my husband and brother taking her to the clinic all the time (she's been in a wheelchair for over 25 years after failed scoliosis surgery, and takes two people to help her in and out of the car; my brother-in-law is stronger than I am, at least till I get my plumming rear end to the gym!), but not when they don't send the results where they're supposed to go. My husband is dealing with the situation for the most part but it might be time to get a meeting with the regional ombudsman who handles elder care issues for the state. And we really don't want to have to move her, nor does she want to move again; she's actually made a few friends among some of the other long-term residents, and she's enjoying activities like bingo -- she even got to go on one of the outings to a local historical museum since they used the bus that has a wheelchair lift. Not sure how much time she has left (she'll be 83 in January) but I'd like them to be as quality as they can be, and right now they're close but not quite there.

The good news is that brother-in-law is doing really well with his medication and therapy for mental health issues; he called last night to get the phone number for our old church because he wants to volunteer with the Downtown Streets Team and maybe work at the Food Closet which the church hosts. I think that is super cool! I wish his dad was still around to see the changes that have taken place...but I think he's looking down from Heaven and smiling. :)

Hello @stilljustme. I hope that the problems with the care that your mother in law is receiving at her nursing home facility can be worked. It sounds like she enjoys living there and has made great friends there, and is involved with fun activities. It is nice that she been able to go out on outings.
It is great news to hear about your brother in law! I am glad that his medication and therapy is going well, and it is very nice that he wants to volunteer with the Downtown Streets Team and Food Closet run by the Church. That is great! :)

@goofygoober25

I'm sorry to hear of everything you're going through. Life can seem tough, and it is tough, but keep on simming and keep up your sense of humor. It's that sense of humor, no matter how though things are, that will get you through it all.

Your family sounds about as messed up as mine! I'll go into details later.

John

"rosemow;12941865" wrote:
It would be great if you took pre ged classes and got your GED @goofygoober27. It would be great for both yourself and also for you to feel that you were honouring your Mum too. It is hard when health problems can make studying hard some days. I am sorry that your Mum is deteriorating after she improved a little. I hope that you will continue to have many special times just being with her, loving her and caring for her. :)

And I agree. Getting your GED will open up doors for you even more. Also check with your state's rehabilitation and work services. They maybe able to help you get a job, even if it's an easy one for you. This will help you get some money on the table, and get you out of the house and in contact with others, which really, really helps.

"charlotteprice;12972537" wrote:
I just want everyone to know that I am thinking of you, prayers go out for all of you, and imaginary hugs to you all too!
I have this thread bookmarked. I don't really reply, but want you all to know that I understand. I feel your pain.

I can tell my memory is slipping away, I blame it on old age, LOL. I usually do not repeat something that someone told me anymore, because I don't remember exactly what they said and I am not one to start rumors, drama, or lies. I just honestly don't remember! I really don't want another MRI just to see how many lesions are lit up in my brain!

People park in handicapped parking for a reason. Just because I can actually walk doesn't mean I shouldn't park in that spot! I just got my sticker about 4 years ago. I cant walk far without being exhausted. I cant walk or stand long without my legs wanting to lock up on me. I drive to work with one eye open sometimes (they get blurry at times, usually on the days I take my injections). Sometimes my balance is not that good. When you have an *invisible* disease, people think there is nothing wrong with you ( I know because I was one of those people).
Oh, and why do people place their empty buggies in the handicapped spots instead of the cart corral? This just bugs me! The cart corral can be two spots over but they will turn around and walk over and leave them in the handicapped spot!

I don't remember what I was leading up to now! LOL. I know there was something I wanted to say though :s I hate it when that happens!

We just take it a day at a time, I do anyway. We never know what tomorrow will bring. We don't know why it happens to us. But there is a reason and we may not ever know!

Have a good day everyone!

Hello @charlotteprice I am continuing to think of you with your ill health. Like you said, we need to just take one day at a time. Sending special thoughts to you.