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- rosemow11 years agoHero+Hello @John_Citron Thankyou for your caring posts on this thread. I am sorry to hear that you have problems in your family.
- rosemow11 years agoHero+Hello @natashified Thankyou for posting the link which will be helpful for people.
"natashified;12974229" wrote:
I feel for your situaation, but if you live in the US, have you every tried going on welfare? Or getting food stamps? You should look into getting SSI since you are ill and disabled!
http://www.ssa.gov/ssi/text-eligibility-ussi.htm
Yes, we used to have foodstamps but stopped getting it for some reason. My husband just reapplied last week with his new income so we are hoping to get it again. It would help a lot because with my issues I'm supposed to eat low carb but carbs are by far the cheapest!
I know when I applied for disability it had a check mark asking if I wanted to apply for SSI too, but I was denied that too because my conditions are not considered disabling. I am hoping if my hearing goes well I can reapply for SSI and be eligible for that too. But thank you very much for thinking about me posting the link! Now others can look into it too.- @stilljustme2 I'm sorry your mom is having so much trouble getting her info to the right people! It's hard when you are going everything right but someone else isn't. She is lucky to have such caring people in her life to help deal with the issue! Hopefully things get figured out soon. I'm glad things are going well for your BIL. :)
@charlotteprice I found myself relating to your post a lot, as well as laughing because it's so true! "frozenorangejuic;12975037" wrote:
@stilljustme2 I'm sorry your mom is having so much trouble getting her info to the right people! It's hard when you are going everything right but someone else isn't. She is lucky to have such caring people in her life to help deal with the issue! Hopefully things get figured out soon. I'm glad things are going well for your BIL. :)
@charlotteprice I found myself relating to your post a lot, as well as laughing because it's so true!
It's actually my husband's mom, but I guess she counts as mine too since she's the only parent we've got left (both my parents are long gone, and his dad passed in 2010 and he was her primary caregiver/advocate). Got home a short time ago from spending a couple of hours helping her with some stuff on her iPad, and I'm exhausted; the seats at Starbucks (where we met so we could use the free WiFi -- I got the table while my husband picked her up and pushed her wheelchair the few blocks to get to the store) weren't all that comfortable, and I'm mentally drained as well. But accomplished quite a bit even though she had trouble seeing the screen somewhat; we're concerned about her eyesight now but she's got an appointment with an ophthalmologist next month to discuss options (she may need some eye surgery to improve matters)."charlotteprice;12972537" wrote:
I just want everyone to know that I am thinking of you, prayers go out for all of you, and imaginary hugs to you all too!
I have this thread bookmarked. I don't really reply, but want you all to know that I understand. I feel your pain.
I can tell my memory is slipping away, I blame it on old age, LOL. I usually do not repeat something that someone told me anymore, because I don't remember exactly what they said and I am not one to start rumors, drama, or lies. I just honestly don't remember! I really don't want another MRI just to see how many lesions are lit up in my brain!
People park in handicapped parking for a reason. Just because I can actually walk doesn't mean I shouldn't park in that spot! I just got my sticker about 4 years ago. I cant walk far without being exhausted. I cant walk or stand long without my legs wanting to lock up on me. I drive to work with one eye open sometimes (they get blurry at times, usually on the days I take my injections). Sometimes my balance is not that good. When you have an *invisible* disease, people think there is nothing wrong with you ( I know because I was one of those people).
Oh, and why do people place their empty buggies in the handicapped spots instead of the cart corral? This just bugs me! The cart corral can be two spots over but they will turn around and walk over and leave them in the handicapped spot!
I don't remember what I was leading up to now! LOL. I know there was something I wanted to say though :s I hate it when that happens!
We just take it a day at a time, I do anyway. We never know what tomorrow will bring. We don't know why it happens to us. But there is a reason and we may not ever know!
Have a good day everyone!
I had to report a bus driver who hassled a passenger over using the discount card reserved for seniors/disabled -- he was saying she "didn't look disabled". Turns out she had a heart condition and the meds she took kept her from getting a driver's license so that's why she qualified for the disabled discount card. My husband was also a driver at the time and I got mad because I knew he would never treat a passenger like that, plus there's a lot of paperwork involved in getting one of those cards and they verify the paperwork pretty closely (the card actually has the owner's picture on it so it's not like you can steal someone's card and easily use it) so I sent a complaint through the website (I went anonymous since a lot of drivers knew me because of my husband). And I hate when people leave their carts in the middle of a parking spot -- they do it in all parking spots around here, not just the disabled access ones! We have similar issues when we take my mother-in-law places, since she's in a wheelchair so we need the parking place with space on the right to get her in and out of the car (using a transfer board to get her from one seat to the other).- rosemow11 years agoHero+
"frozenorangejuic;12974964" wrote:
"natashified;12974229" wrote:
I feel for your situaation, but if you live in the US, have you every tried going on welfare? Or getting food stamps? You should look into getting SSI since you are ill and disabled!
http://www.ssa.gov/ssi/text-eligibility-ussi.htm
Yes, we used to have foodstamps but stopped getting it for some reason. My husband just reapplied last week with his new income so we are hoping to get it again. It would help a lot because with my issues I'm supposed to eat low carb but carbs are by far the cheapest!
I know when I applied for disability it had a check mark asking if I wanted to apply for SSI too, but I was denied that too because my conditions are not considered disabling. I am hoping if my hearing goes well I can reapply for SSI and be eligible for that too. But thank you very much for thinking about me posting the link! Now others can look into it too.
I hope that you are able to get food stamps again and that your hearing goes well. - rosemow11 years agoHero+Hello @stilljustme2 I hope that your mother in law's appointment with the ophthalmologist next month will lead to help to improve her eye sight. There may be eye drops that can help as well as eye surgery.
- rosemow11 years agoHero+As the sun rises to start a new day and then the sun sets in the evening, may you have the strength that you need just for that day. May we take one day at a time, even sometimes just an hour at a time, and may the beauty that is contained in the colours of a sunrise and sunset encourage your heart.
"frozenorangejuic;12971295" wrote:
Wow thank you for starting this! I am constantly amazed by the supportive people on this site. Reading through everyone's stories has me in tears!
As for me, I've been chronically ill my whole 27 years. I have applied for disability three times since 2011 and have been denied each time, I am now waiting on a hearing. I can't work and my husband tries to support us but had his hours cut to part time (they simply don't need anyone in his position full time anymore). I don't have health insurance and even with the new ACA can't get any because we actually don't make enough for a subsidy! Financially we are supposed to get medicaid but in our state you can't unless you have a child. Unfortunately I miscarried our only child Jesse a little over two years ago. Now my doctor has ordered $1,100 worth of bloodwork and tests that we have no way to pay for. My symptoms are worsening and I have no hope for treatment until I get these tests done. I can't sleep half the time and when I do it's not restful. I am in constant pain that is not managed. I have pain meds for endometriosis but I can't use them for this pain or I won't have any when that flares. I'm not allowed to take any OTC meds like motrin or advil. I am being treated for depression but it is only getting worse. There are times I think things I know I shouldn't, like why even bother going on as my situation only gets worse never better. My mother set up a gofundme campaign for me to see if we could raise the $1100 but have only raised $350 so far. I am extremely thankful for everyone who has donated but I'm just not sure how much longer I can go on like this. When I'm feeling particularly bad I try and look at this picture and it does help some.
http://creativestorytree.files.wordpress.com/2013/10/rough-days1.jpg?w=682
I hope you can find what you need. Depression treatment is hard; having been there and having been caregiver to people who are there, I just can't understand how it doesn't itself get classed as a disability.
But mostly I wanted to say that I love that image SO MUCH. Thank you for including it at the end. I've just bookmarked it for my rough days, which are mostly the result of being oversensitive to the moods of those I am caring for, so that their rough days become mine, even when their days are really only roughish.